The Charlotte Connolly Trust Run

The attention of Shamrocks members and friends is drawn to the Charlotte Connolly Trust Fun Run which takes place next Sunday morning 27 November 2016 at 11.00 am in the Lilliput Adventure Centre. If ever an event was worthy of support by our members then this is it.  This 2Km/5Km family  fun run-walk is organised by the Lynn Heights Residents Association; Charlotte is part of the Lynn Heights gang that contributes so much to Mullingar Shamrocks in many different ways and is a Thursday night regular at the Bingo sessions.

Charlotte is believed to be the only person in Ireland diagnosed with Degos disease, a rare blood vessel condition. Fewer than 200 cases have been reported internationally since it was discovered in the 1940s. There is no known cure for Degos disease, and Charlotte has the more serious systemic version, which affects the internal organs.

However, a handful of patients in the US have been treated on an experimental basis with the drug commercially known as Soliris, and the condition of some has improved as a result. However the Minister for Health and the HSE have so far refused to sanction treatment for Charlotte using this medicine because of the costs involved.

The Sunday morning fun run costs €10 to enter, a small sum that may make a big difference.